:: TREAT-NMD global conference 2011

8-11 November 2011
Geneva, Switzerland

The conference will comprise a range of sessions addressing the challenges in the neuromuscular field, including: Delivery of future therapies; Biomarkers; Care considerations; Neuromuscular diseases and society; and Regulatory issues, orphan drugs and the rare disease field.
More information: http://www.treat-nmd-conference.org/

:: Rare 2011 : The Eurobiomed meetings on rare diseases “Innovation and Partnerships for Patients”

2-4 November 2011
Montpellier, France

This French speaking conference aims to be a benchmark event in the fight against rare diseases in Europe by giving all the stakeholders - health professionals, companies, academics, patient associations and institutions, the opportunity to discuss and network.
More information: www.rare2011.com

:: Paris Summer School of Myology 2011

:: Myology 2011

9-13 May 2011
Lille, France
Organised by the French Neuromuscular Association (AFM), the 4th International Congress of Myology will take place in Lille, France, between 9th and 13th May 2011.
During these five days, close to 1,000 participants coming from the five continents are expected to have an update on the scientific and medical advances made in muscle science and its related disorders.
The deadline for online submission of posters is Monday 24th January, and full instructions are available on the Congress website.

:: ISBER 2011 Annual Meeting and Exhibits

15-18 May 2011
Hyatt Regency Crystal City
Arlington, VA (Washington, DC)
Early (Reduced) Registration Deadline: March 4, 2011

:: The Meeting – Optimal Role of Patient OrganisationS in Drug Development

24th March 2011
Amsterdam, Netherlands

:: Rare Disease Day 2011 – “RARE BUT EQUAL”

28 February 2011 will mark the fourth International Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 countries. On that day, hundreds of patient organisations from more than 40 countries worldwide will be organising awareness-raising activities and converging around the slogan “Rare but Equal”. As members of the rare and neuromuscular community, you can participate by becoming a Friend of Rare Disease Day. You only have to post the logo on your website and link your website to www.rarediseaseday.org.

:: GSK and the Italian Telethon enter historic partnership

The Italian Telethon and GlaxoSmithKline have signed a pioneering agreement to research and develop gene therapies with the potential to treat seven rare diseases. This is the first time in Europe that a major pharmaceutical company has invested in the development of advanced therapies for rare diseases, one of which has the chance of reaching the market soon.
Five of the EuroBioBank biobanks belong to the Telethon Genetic Biobank Network (TGBN).